Indonesia

Smile Stories

When we think of children we usually envision happy, active kids running around without a care in the world. However for children with congenital heart disease they are often sickly and a bit of activity could tire them out. Some live sedentary lives not because they want to but because they need to. Many of them have uncertain futures and live each day at a time.

When we have the chance to help improve these children’s lives, every single smile we receive is priceless. Here are their stories and how Nu Skin distributors have helped create smiles.

Name      :   Taftazani
Age         :   3 Years Old

The eldest of 2 sons in the family, Taftazani was diagnosed with heart problem when he was only 2 months old. His heart condition has caused him to frequently suffer from cough and flu. With support from SEACHF, Taftazani is looking forward to going to school and playing with his friends.

Diagnosis : PDA
Treatment: ADO (August 2010)

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Name      :   Clarissa Adelia
Age         :   10 months

Baby Clarissa was diagnosed with a life-threatening heart disease just months after she was born. She lives in a small coastal town in West Java. Her father was a fisherman with a monthly income only USD65. Unable to afford the heart surgery that would save his little girl’s life, Clarissa’s father turned to the Southeast Asia Children’s Heart Fund for help.

Thank to donations from the Nu Skin SEACHF, Clarissa received the treatment and is expected to enjoy a happy and healthy future.

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Name      :   Andini & Andina
Age         :   3.5 Years Old

The cute twins suffered from an abnormal blood vessel connecting the two great arteries coming from the heart called patent ductus arteriosus (PDA). Living in a small town near Jakarta with parents who work as factory labor, these little girls got corrective surgery in April with the help from SEACHF.

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Name      :   Nedin Sahrul
Age         :   7 Years Old

Nedin lives with his family in a hilly, dusty village 80 km from Jakarta. From his house, it takes around 45-60 minutes ride on motorcycle to get to school. In 2010, this 1st grade student of elementary school dropped out of school due to health condition. His defective heart caused Nedin to be too exhausted to go through a long and bumpy ride every day. Before getting medical treatment, he spent most of his time at home and played with his neighbors’ kids.

Nedin was treated in March 2011 with the help from Yayasan Jantung Anak Indonesia (YJAI) and support from SEACHF. An expressive little boy, Nedin shared his enthusiasm to take pictures during his recovery time at the hospital. Three months later, he showed his expertise in tree climbing when Nu Skin staff visited him at his house. He feels much better and fine now that he is able to be physically active after being treated. What’s more important is that Nedin feels he is ready to go back to school.

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Name      :   Nia Rohayati
Age         :   5 Years Old

Nia lives in a small district outside Jakarta, Cikarang, with her parents and a sibling. Her father supports the family by selling pre-paid phone cards near their house.

Having heart problem made her often sickly. Thanks to ADO treatment that she got with SEACHF support, she is now healthy and happy to be back in school.

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Name   :   Ahmad Magroby
Age      :   10 years old

Magroby is the only child in the family. He is a smart little boy who is now in the 4th grade of elementary school. The boy was only recently identified with heart problems, when one day he got dengue fever. SEACHF helped Magroby undergo surgery. His family was very grateful for the support from Nu Skin.

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Name      :   Khansa
Age         :   2 Years Old

Khansa’s birth weight was only 800 grams. She was was diagnosed with congenital heart disease. Coming from a family whose income is not steady – her father works as tailor, Khansa got support from SEACHF to undergo treatment. After being treated, she gained good weight and is now very healthy and active. She likes to drink milk very much.

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Name      :   Syahmi Al Afif Setiyadi
Age         :   8 Years Old

Afif is the only child in the family. Her mother resigned from her work as a nurse of cardiovascular doctor to focus on her only boy. Before Afif was very weak and often felt sick. Although his body is considered tall for his age, his health was very poor due to PDA that he has had since he was 7 months old. Being the only grandson, Afif’s grand parents were initially reluctant to let him go through surgery. They expected that the illness could be healed over time, but unfortunately not. His father, whose work is to produce and sell rubber sandals, was so thankful to get support from SEACHF so that Afif could get ADO treatment.

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Name   :   Putri Indah Lestari
Age      :   6 years old

6-year-old Putri was a shy little girl and lived in a make-shift bamboo hut. She was under the care of her aunt and her uncle who works as a gardener. Putri was often sickly and this led to extreme worry for her guardians. 

She was later diagnosed with Arial Septal Defect (ASD), a serious heart condition which required surgery. Her family could not afford the high expenses but with the help of Nu Skin SEA CHF, Putri was finally able to receive treatment and she can now look forward to growing up as a normal, healthy child.

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Name      :   Fitriani
Age         :   7 Years Old

Fitriani suffered from a combination of different heart problems. Due to her complex conditions, she needed multiple surgeries or medical treatment which require very high cost.

As daughter of a warung seller in Brebes, a small city in Center of Java, it was likely impossible for her to get medical support. Only when she was referred to Cipto Mangunkusumo General Hospital (RSCM), she was introduced to YJAI who then sought for donors for her. Nu Skin SEACHF helped to sponsor her catheterization as one necessary method before she could be treated further .

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Name      :   Halimatussadiah
Age         :   4 Years Old, 8 months

Diah was diagnosed to be suffering from Ventricular Septal Defect (VSD) after she was frequently sick with cough and flu. When this kindergarten kid was catheterized on 2 September 2010 with the support from SEACHF, it was found out that her heart needed further surgery. Diah then had corrective heart surgery on 1 November 2010 and is now a happy and healthy child.

Diagnosis: VSD
Treatment: Surgery (1 November 2010)

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Name      :   Mohammad Chalid
Age         :   2.5 Years Old

Chalid is the eldest son in the family living in Indramayu, a small town in West Java. His parents work at the city hospital and earn USD118 per month. Chalid’s heart problem caused his body to remain abnormally small for a child of his age. He was very thin and cried all the time, especially when he felt very sick.

He had corrective heart surgery and only during the surgery, doctor found that Chalid also had lung problem caused by the abnormal heart condition and got it treated too. His family is really grateful for Nu Skin’s generosity through the SEACHF program.

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Name   :   Kiandra Pradistha Dzaky 
Age      :   8 months old

Kiandra and her older sister were both born with a heart defect, Patent Ductus Arteriosus (PDA). Kiandra's disease was detected when she was a month old. Whilst her sister went through a lengthy series of intensive medical treatments before she was cured,   8-month-old Kiandra could not due to her small and frail physique.  

With 2 young children that requiring expensive medical care, Kiandra's family could ill afford the high costs. However, with the support of Nu Skin SEA CHF, she received an Amplatzer Ductal Occluder (ADO) in August 2013 and every day is a new adventure for Kiandra, now that she is in the pink of health.

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Name      :   Esti Mulyani
Age         :   3 Years & 8 Months

Little Esti was diagnosed with PDA. Her father earns a living as a bus driver. The family faced financial strain due to the low income.

With support from SEACHF, Esti was able to have a non-invasive medical treatment for her heart problem.

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Name      :   Nur Isma Rahmadila
Age         :   1 Year Old

Nur Isma suffered from PDA and received support from SEACHF to undergo medial treatment. Her father sells candies, snacks at a little store near the house and earns less than USD 100 every month. Living in the suburbs of Jakarta, the family’s low income make her parents so grateful to receive financial support from Nu Skin SEACHF.

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Name      :   Nasywa
Age         :   5 Years Old

Nasywa was born not only with heart problem. She also has difficulty speaking. Living in the greater Jakarta, her father earns money from informal sector and gets less than USD 100 per month. Before the treatment, she was often fatigued and consequently was very inactive compared to other kids.

Nu Skin SEACHF supported her to have ADO in June 2011, and after that she transformed to be a happy, active little girl.

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Name      :   Aisyah Ainul Qolbi
Age         :   9 Years Old

Since she was 2 years old, Aisyah, the 3rd grade student of SD Islam Terpadu Karang Pandan, Karang Anyar, Tawang Mangu, Solo, was diagnosed with congenital heart disease and malnutrition. Before the surgery, Aisyah only weighed 20 kg and she was frequently absent from school due to her poor health. After corrective surgery, Aisyah can now live a normal life and go to school just like other children.

Diagnosis : VSD PMO Medium + ASD Medium
Treatment : Surgery
(July 2010)

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Name   :   Kenzo Bong
Age      :   2 years old

Kenzo Bong lives in a slum area in Jakarta. He was diagnosed with an abnormal heart rate and heart problem at 1 year old. Kenzo was advised by doctor to go for surgery. Unfortunately, his father’s earnings alone was not sufficient enough to support the surgery and Kenzo had to wait for almost 1 year to be treated.

The family is very grateful to get support from Nu Skin SEACHF. Kenzo has been operated and soon after the surgery, he has been able to share his smile for Nu Skin’s donors.

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Name      :   Raffano
Age         :   2 Years Old

Unlike other 2 year-old kids, little Kamila was not able to speak and sit up on her own. Born with heart defects (PDA) and from a poor family, her parents had no way to have her treated. Through Yayasan Jantung Anak Indonesia and SEACHF, Kamila received financial support and was treated (ADO) on 2 May 2012.

The parents expect that Kamila will soon be able to speak and walk as her heart defects have now been corrected.

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Name      :   Satria Nabeel
Age         :   4.5 Years Old

Cute Nabeel loves playing with toy cars and trucks since he was very young. He brought his toy trucks with him when he was hospitalized to have AMVO for his heart problem. Being the only kid in the family, Nabeel is a polite, soft-spoken little boy who likes to draw.

Nabil’s father works with a contracting company and earns a meagre income to finance his son’s treatment. With support from Nu Skin Force SEACHF, Nabeel is now able to enjoy brighter and healthier days.

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Name      :   Ismi Pebriani
Age         :   10 Years Old

Ismi is an orphaned kid living with her mom in Bandung, West Java. Her father died couple years ago and left little Ismi who frequently got ill. Her mother receives as little as USD100 for retirement fee from his late father to support the family.

Only last year she was diagnosed to have congenital heart disease. Her mother and sister, who take care of her so much, are very grateful to SEACHF for the financial assistance.

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Name   :   Tarisa Marito
Age      :   13 years old

Tarisa is the second daughter in the family. Her father was once a fruit seller in Medan, but is currently out of work. Her mother now sells coffee and other drinks at their home to earn
some money. Tarisa was 12 years old when she received support from Nu Skin SEA CHF in 2013. 

When she was 5 years old, Tarisa was diagnosed with congenital heart disease that required her to use a pacemaker. She easily tired out and could not participate in sports activities at school. To ensure that the pacemaker is in good condition, Tarisa has to undergo routine checks. This device can only be monitored at Cipto Mangunkusumo General (RSCM) Hospital in Jakarta, and this caused her family financial strain as they had to spend a lot of money to visit Jakarta every year.

Despite her condition, Tarisa is a clever, friendly little girl who has great enthusiasm for life. Tarisa met Nu Skin in March 2013 when she received funding from the Nu Skin SEA CHF to
replace batteries for her pacemaker at RSCM Hospital in Jakarta.

In May 2013, Tarisa got a chance to sing at Nu Skin Indonesia’s Expo, at one of the largest shopping malls in Medan. Everyone was very thrilled with her confidence and Tarisa returned to perform at Nu Skin Indonesia’s Convention in June 2013. With her clear voice and stage presence, she garnered thunderous applause from more than 2000 distributors at the convention who were amazed and gratified to meet in person, one of the children they had supported via Nu Skin SEA CHF.

Tarisa is an intelligent girl who enjoys singing. Her dream is to become a professional singer one day.

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Name   :   Aditya Adli Zhafif
Age      :   8 years old

Aditya Adli Zhafif is a friendly little boy living in Jakarta. He is now in 3rd grade of elementary school. He was diagnosed with ASD when he got dengue fever in early 2015.

Adit’s father earns money by working as a servant at a rugs store. Because of his economic condition, Adit’s father was very troubled when his only child had to have a surgery. Adit and his family are very grateful with the help received from Nu Skin SEACHF for him to undergo surgery in September 2015. Adit is now very active and healthy.

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Name      :   Aisah Khaira Lubna
Age         :   1 Year Old

Cute baby Aisah went through ADO treatment on 18 April 2013. The treatment was a success and she was happy and cheerful almost immediately after her treatment.

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Name      :   Zakhesia Vajireh
Age         :   12 Years Old

Zakhesia, known as Caca, is a junior high student. Her illness made her unable to be physically active in the class. She was diagnosed with heart problem when she was 2 years old; however her family could not afford to do much.

Caca’s father, works as laborer at a plastic factory and was not able to support her daughter’s treatment when doctor strongly advised her to have heart surgery. The family is very grateful to receive financial aid from Nu Skin SEACHF.

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Name      :   Nadifa
Age         :   4.5 Years Old

Nadifa was first identified with heart problem when she was 2 years old. She often got cough and flu and took a long time to recover from it. Only when she met with a caring doctor in her hometown, she was then referred to a cardiologist for further diagnosis. Nadifa had heart defects and had to undergo treatment. Her father works as tofu seller and is very grateful with to SEACHF for the financial support to the family to enable Nadifa to live a healthy life.

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Name   :   Fajar Dirgantara
Age      :   5 years old

Fajar was diagnosed with heart problem this year and requires a surgery to fix it. As a driver, his father earns only enough money to cover for the family’s expenses, and thus could not afford to let Fajar go for the surgery.

Fajar and his family are very grateful to get support from Nu Skin SEACHF. Fajar had his surgery at the Jakarta Heart Center.

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Name      :   Najwa Rainaya
Age         :   6 Years Old

Like most other little girls, 6 year-old Najwa loves to play with stuffed toys. She holds the purple puppy toy given to her tight.

Although her father works as employee in a private company in Jakarta, the cost of medical treatment for Najwa remains a burden for the family. Her parents are grateful to the financial aid from SEACHF to help their little girl live a happy healthy life.

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Name      :   Gabriel String Hartono
Age         :   4.5 Years Old

Gabriel is a smart, active little boy. Even during the time at the hospital, he kept himself busy drawing and writing things.

His father works as salesman and earns around USD 200 per month, which is not enough to pay the medical treatment of the boy.

Before he got surgery, Gabriel often got cough and flu, which prevented him from doing activities that he likes. Now that he is healthy, this cute fan of Angry Birds will enjoy his time at school and with the friends.

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Name      :   Muhyin
Age         :   10 Years Old

Muhyin lives with his father and grandmother. Son of a parking guard at the Cipto Mangunkusumo hospital, Muhyin comes from a poor family. With the help from Nu Skin SEACHF, Muhyin underwent corrective heart surgery. The photo shows Muhyin today, who is healthy and active.

Diagnosis : Ventricular Septal Defect (VSD)

Treatment: Surgery (September 2010)

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Name   :   Anissa Dewi
Age      :   12 years old

Anissa is little girl with special health conditions. She was born with glaucoma, a disease of the eyes that lead to irreversible vision loss. In late 2014, she was diagnosed with heart problems. Anissa’s father is a security guard the family was facing financial strain. With funding from SEACHF, Anissa was able to get the surgery she needed. The family is very thankful for the support from Nu Skin.

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Name      :   Harrys Arya Yudhistira
Age         :   1 Year Old

Baby Harrys received support from Nu Skin SEACHF to have ADO treatment for his PDA. Harrys’ family lives in an plantation area in North Sumatera, Kisaran, where his father works as a labourer. With support from Nu Skin SEACHF, this cute little boy was able to get ADO treatment to give him a better quality of life.

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Name      :   Reza Syahputra
Age         :   5 years old

5 year-old  Reza was diagnosed to have congenital heart disease (PDA) only 3 months ago. Born in a family with father who works as a cleaning service staff, his father sought for help from Yayasan Jantung Anak Indonesia to fund Reza’s surgery. With support from Nu Skin SEACHF, Reza underwent ADO treatment on 3 May 2012.

Skin SEACHF, the 2-year old little boy got necessary treatment to fix his heart problem.

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Name      :   Lihaiyen
Age         :   2 Years Old

Lihaiyen was very pale before underdoing the catheterization treatment. His finger nails and lips looked bluish, which is a common symptom for those with congenital heart disease. His father is a rental motorcycle rider and earns low income to be able to support his kid’s medication. With the support from Nu Skin SEACHF, he went on a catheterization to have his heart treated.

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Name      :   Raffano
Age         :   2 Years Old

Raffano was diagnosed with PDA , after he frequently caught cough and flu. Her parents never thought that it was because of his heart condition.

When the problem was identified, his family had financial difficulty to support Raffano’s treatment. His father was recently laid off from job. With the support from Nu Skin SEACHF, the 2-year old little boy got necessary treatment to fix his heart problem.

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Name   :   Ziqri
Age      :   10 years old

Friendly Ziqri was smaller in stature compared to most boys aged 10. He was not growing as well as others and his weak physique meant he had to face numerous challenges growing up. It was then discovered he suffered from Patent Ductus Arteriosus (PDA), a condition which affects normal heart functions. 

Ziqri received help from Nu Skin SEA CHF and underwent treatment in 2013. Being an enthusiastic boy who wants to help others like him with similar health issues, he agreed to be filmed for Nu Skin Indonesia’s Convention, just a week after his surgery. With a new lease of life, he can now focus on his studies and spend quality time with his siblings and friends.

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Name   :   Rafly Dwi Handika
Age      :   9 years old

Rafly was born with down syndrome and if that was not heart aching enough, he was diagnosed with congenital heart disease in 2012. The disease introduced other health issues that plagued much of his young life. Fortunately, 9-year-old Rafly had a strong, positive and loving personality and this gave him and his mother the courage to shoulder on.

Rafly garnered the attention and support of Nu Skin SEA CHF and received surgery in 2013. Now that his health problems have become a thing of the past, Rafly has become a happier and healthier child.

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Name      :   Fadil Bangun Priyatna
Age         :   2 months

Baby boy Fadil was born with complex heart problems. Diagnosed during his early days, the doctor suggested Fadil to have heart treatment soon. Initially it was indicated that the baby had to go through heart surgery; however, thanks to the expertise of the doctors at Cipto Mangunkusumo hospital, Fadil only underwent a medical treament.

Fadil is the first kid of his parents; his father worked as temporary staff at the hospital’s cooperative office. His parents really thank Nu Skin SEACHF for generosity and support to their baby’s treatment.

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Name      :   Aulia Thalita
Age         :   5 Years Old

Aulia was detected with VSD when she was 2 months. She often got cold and her body was quite tiny. Her parents run a small food stall owned by their parents in-law in Malang’s bus station. They are very grateful to SEACHF for the financial support to treat their eldest child.

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Name      :   Neiska
Age         :   6 Years Old

This little girl was diagnosed with PDA only recently; quite late for a child her age. Financial strain on the part of her parents who work as factory laborers caused Neiska to be frequently sick. With support from SEACHF, she went through medical treatment for her heart problem. One month after, we met her again. This time she is full smiles and energy as she now feels healthy and happy.

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Name      :   Malika
Age         :   1 Year Old

Malika was born with down syndrome. When she frequently got cough and flu, her parents never thought it was because of her heart condition. When the problem was identified, her family found it difficult to support the financial needs for the treatment. Thanks to Nu Skin’s support through the SEACHF, the 1-year old little girl underwent the necessary treatment to fix her heart problem.

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Name      :   Mohammad Saputra
Age         :   4.5 Years Old

Saputra is the 3rd kid in the family, he has 2 sisters. This kindergarten boy has great interest in cars and trucks. He had PDA before he got assistance from Nu Skin SEACHF to treat his illness with ADO.

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